The New England
Registry for Paget's Disease of Bone is being organized at Massachusetts
General Hospital in Boston, MA. The purpose of the registry is as
statistical data regarding incidence and prevalence of Paget's
disease in New England.
geographic and/or familial clusters of Paget's disease in order
to gain further insight into the genetic basis of Paget's disease.
understand the course of Paget's disease by providing a database
for researchers, clinical trials for patients, and bone tissue
for scientific study.
the course of patients who have Paget's disease, and address the
effectiveness of newer bisphosphonates in preventing complications.
with Paget's disease living in New England are invited to participate
in the registry. No blood tests are required. Participants will
remain under the care of their primary physician. However, consultations
with registry physicians will be free of charge to those persons
having no health insurance. Patients may make appointments by calling
Massachusetts General Hospital at 617-726-7938.
began September 1, 1999, and was established in collaboration with
The Paget Foundation and supported with an unrestricted educational
grant from The Alliance for Better Bone Health: a partnership of
Procter & Gamble Pharmaceuticals and Aventis Pharmaceuticals.
The Medical Director of the registry is Margaret Seton, MD. z
For more information,
write to Margaret Seton, MD-Medical Director, The New England Registry
for Paget's Disease of Bone, Arthritis Unit Bulfinch 165, Massachusetts
General Hospital, Boston, MA 02114 or click here:http://www.massgeneral.org/pagetregistry