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Surgeon General's Report On Osteoporosis And Bone Health Includes Excellent Information On Paget's Disease And Other Disorders

Though the main focus of the Surgeon General's Report on Bone Health and Osteoporosis (published October 14, 2004) is osteoporosis, the Report includes excellent information for patients and health professionals on Paget's disease of bone and the other disorders that the Paget Foundation addresses.

The Foundation congratulates the Surgeon General Dr. Richard H. Carmona for this outstanding Report. A major theme of the Report is that bone health is critically important to the overall health and quality of life of Americans. Another important theme is that great improvements in the bone health status of Americans can be made by applying what is already known about diagnosis and treatment of bone diseases.

However, as Dr. Carmona points out, "too little of what has been learned thus far about bone health has been applied to practice."

The Foundation plans to use the information in the Report to expand its outreach to patients, health professionals and the general public.

Sections of the Report on Paget's disease of bone follow:

"Bone disease, including osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, rickets, osteomalacia, renal osteodystrophy, and hyperparathyroidism, remain a major public health problem in the country." P. 4

"Paget's disease of bone is a progressive, often crippling disorder of bone remodeling that commonly involves the spine, pelvis, legs, or skull (although any bone can be affected). If diagnosed early, its impact can be minimized." P. 40

."Much less is known about the frequency of most other skeletal diseases. This is because many of them, such as Paget's disease of bone and primary hyperparathyroidism, appear to be underdiagnosed." P. 81

"Quality of life (QOL) is also reduced in patients with other bone diseases. For example, patients with Paget's disease report a high frequency of hearing loss and boney deformities, but many also report depression (53.4 percent), sleep problems (51.5 percent), and poor quality of life (42.1 percent report poor or fair QOL). In the only published study to explore factors related to QOL in Paget's disease (Gold et al. 1996), the authors found that the psychological factors (including depression and loss of self-esteem) were the most important contributors to reduced QOL in these patients; they explained more of the variance (19 percent) in QOL than did biomedical (3 percent), social (2 percent), or cost (1 percent) factors. They also found that QOL was significantly decreased in patients with more extensive or symptomatic Paget's disease." P.101

"Diseases such as hyperparathyroidism, rickets, osteomalacia, and Paget's disease can often be identified by being aware of the warning signs and/or through simple biochemical measurements. Early identification of such diseases is critical, since treatment at an early state can often be highly effective." P. 186

The complete report is available on the World Wide Web at
http://www.surgeongeneral.gov/library
or by calling 1-866-718-BONE