Privacy Policy


This is the website of The Paget Foundation,
Mailing address:
The Paget Foundation
120 Wall Street, Suite 1602
New York, NY 10005-4035

You can contact us by telephone at 1 (800) 23-PAGET or by email by clicking here. We provide this notice to explain our online information practices. By visiting the Paget Foundation at, you are accepting the practices explained in this Privacy Statement.


The Paget Foundation is committed to protecting the privacy of its users. Information gathered by the Paget Foundation is used to monitor the effectiveness of our site and to provide information. When you visit our website, our server automatically records domain name and standard anonymous information about the operating system and web browser you are using. This information is used only for statistical purposes to help us manage our site. If you volunteer information about yourself by filling out an interactive form on our website such as the Registration or Donation forms, you may be interested to know the Paget Foundation's Information Sharing Policy which is as follows:

The Paget Foundation does not rent or share donor information.

Donor and patient information is confidential. Under no circumstances will the Paget Foundation provide information to outside entities unless required by law and then only after providing notice to the donor or patient.
The security of your personal information is very important to us and we are committed to protecting the information we collect. The Paget Foundation website uses firewalls and has security measures in place at its facility to protect against the loss, misuse, or alteration of information collected from you at our website. This includes the use of Secure Sockets Layer (SSL) for processing contributions.

The Paget Foundation reserves the right to change this policy at any time. Our privacy policy will be kept up to date and clearly posted on our website.

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This publication answers most commonly asked questions about Fibrous Dysplasia and McCune-Albright Syndrome.

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